FEMaLe partner from University of Edinburgh organized a webinar “Endometriosis: the painful truth – Curious”.

Participants:

  • Fiona Stalker, interviewer, endometriosis patient and journalist
  • Professor Philippa Saunders FRSE, FMedSci, Professor of Reproductive Steroids, University of Edinburgh
  • Professor Andrew Horne FRSE, FRCOG, Professor of Gynecology and Reproductive Sciences, University of Edinburgh

Here are some highlights from the discussion:

Q: What causes endo?

A1: If we knew that we’d be much further on!
A2: It’s complicated… overlapping symptoms with other conditions and a lack of general awareness of the disease are not helping

Q: Why does endometriosis take so long to diagnose?

A1: Lack of awareness, misinformation and a normalization that the pain is normal
A2: If there were simple tests, it would be a very different story. Currently, a diagnosis requires difficult technically complex surgery.

Q: What is the future of endometriosis?

A1: Non-invasive blood test.
A2: Properly individualized treatment.
A3: Young women and any pain in the pelvic region to be taken seriously.
A4: We want to partner up with patients because they know their bodies best!

Complete webinar is available on YouTube.

We’d love to hear from you your thoughts on the webinar, and which topics can be further included.

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