Knowledge and competencies
FEMaLE is an Open Science driven initiative. It is an interdisciplinary research and innovation project, connecting stakeholders from various health related fields, including:
The civil society
Presence of the experts and companies from various parts of the value chain, from data and IT systems experts to researchers and specialist doctors at hospitals, indicates that the consortium summarizes the necessary knowledge and competencies to make the project successful.
Interdisciplinary researchers, hospitals, digital solutions experts, providers and civil society actors will create solutions to be shared through advocacy and dissemination. Public and patient involvement is crucial to FEMaLE throughout, as usability of the developed technology and the willingness to utilize it needs to be ensured, given that active engagement with the technology is essential for its success.
Interdisciplinarity and stakeholder knowledge is crucial as it addresses health challenges, including a wide range of user needs and requirements, ethical considerations, security and privacy issues. Thus, the involvement of stakeholders and knowledge from multiple disciplines is paramount to the success of FEMaLE. Furthermore, active engagement of end users, such as patients and healthcare providers, is necessary to enable the optimized and safe use of the clinical decision support tools which will be developed during the project.
The research activities, such as data collecting and analysis, identifying patterns and models, within FEMaLE will have in view the scientific utility and value. Thus, the implementing activities of the research results will have a lasting impact upon both direct and indirect beneficiaries. These activities are expected to be built on realistic scenarios for new health and care pathways, and should integrate multi-disciplinary research involving behavioural, sociological, medical and other relevant disciplines.
Comprehensive and interdisciplinary frameworks, based on a person-centered, holistic approach, is urgently needed, along with more research that can give insight into the underlying biology of the disease, enable new therapies, and create high quality evidence to help improve care. FEMaLE will design, validate and implement a comprehensive model for the detection and management of people with endometriosis to facilitate shared decision making between the patient and the healthcare provider. It will enable the delivery of precision medicine, and drive new discoveries in endometriosis treatment to deliver novel therapies and improve quality of life for patients.