Endometriosis is a chronic disease where tissue like the lining of the uterus is found in other locations around the body. For the 830,000 people living with endometriosis in Australia, this often results in an immense burden on all aspects of daily life.

In 2018, Australia was the first country to introduce a roadmap and blueprint to tackle endometriosis in a nationwide coordinated manner with the National Action Plan for Endometriosis (NAPE).

NAPE was created as a partnership between government, endometriosis experts and advocacy groups. There are several other countries who are now considering similar plans to address the burden of endometriosis.

As researchers and clinicians are working to improve the lives of those with endometriosis, the authors share their experiences and discuss areas that should be considered when developing these national plans, including diagnostic pathways without the need for surgery, and building new centres of expertise in Endometriosis and Pelvic Pain.

Authors: Mike Armour, Jodie Avery, PhD, Dr. Mathew Leonardi, Leesa Van Niekerk, Marilla Druitt, Melissa Parker, Jane Girling, Brett McKinnon, Antonina Mikocka-Walus, Cecilia Ng, Rebecca O’Hara, Donna Ciccia, Katherine Stanley, and Subhadra Evans.

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